News About The Cure
Local DNA Repair Inhibition for Sustained Radiosensitization of High-Grade Gliomas
August 18, 2017
Molecular Cancer Therapeutics
Another example of how The Cure Starts Now and the DIPG Collaborative are continuing to fund innovative research to find a cure for DIPG with this grant we funded with Dr. Bindra at Yale.
Contemporary survival endpoints: an International Diffuse Intrinsic Pontine Glioma Registry study
August 16, 2017
Thanks to the incredible support and leadership of The Cure Starts Now and DIPG Collaborative, this research from Dr. Michelle Monje was just published, evaluating survival endpoints in patients registered in the International DIPG Registry. Another reason why the DIPG Registry is so vital in moving DIPG research forward!
Young Wakeboarder Raises More Than $3K For Cancer Cure
August 8, 2017
Laconia Daily Sun
MEREDITH — A 7-year-old wakeboarder competing in Saturday’s Winniskiathon completed her 18-mile circuit on Lake Winnipesaukee while raising more than $3,000 to assist in finding a cure for Diffused Intrinsic Pontine Glioma, or DIPG, an aggressive form of cancer.
Kira Livernois had previously gone 14 miles on a wakeboard and, over the weekend, she extended that to 18 miles, riding a wake from Saunders Bay in Gilford, around Parker Island in Wolfeboro, and back.
Kira and her family had decided to make her participation in the seventh annual Winniskiathon into a fundraiser for The Cure Starts Now, honoring John Bradley Thompson, a Gilford boy who died of DIPG.
– Tom Caldwell
Robesonia woman founds Jo’s Everglow, a local chapter of an international foundation
August 4, 2017
By all accounts, Josie Grove was a funny little girl. She made up silly nicknames for her family members, and she really wanted a piece of land that her parents purchased to be called Greeny Green Hole. She dubbed her twin sister, Samantha, "the messiest cook in America," and turned looking for hummingbirds and butterflies into an art form. She loved sunflowers, dogs and the beach, and her mother's perfume that smelled like honeysuckle. She loved her sister and her little brother, and the color green and chocolate. All that love came right back to Josie, from her parents and siblings and grandparents and aunts and uncles and cousins and friends.
On Thursday, her mother, Alissa, and others will continue to share the love that was Josie with a fundraiser at Immanuel United Church of Christ, Shillington. The event will benefit The Cure Starts Now, an international foundation that provides funding for cancer research, specifically pediatric brain cancer, from which Josie passed away in August 2015.
Alissa recently founded a local chapter of the organization, naming it Jo's Everglow. Josie was diagnosed with Diffuse Intrinsic Pontine Glioma, or DIPG, in March 2014. She was 3 1/2 years old. Alissa and Josie's father, Dr. Matthew D. Grove, were told that their daughter's life expectancy at that point was between four and eight months.Radiation and chemotherapy shrank the aggressive brain tumor, and the family embarked on a series of adventures, including to Disney World, Costa Rica, Jamaica and Ocean City, N.J
Alissa recently founded a local chapter of the organization, naming it Jo's Everglow. Josie was diagnosed with Diffuse Intrinsic Pontine Glioma, or DIPG, in March 2014. She was 3 1/2 years old. Alissa and Josie's father, Dr. Matthew D. Grove, were told that their daughter's life expectancy at that point was between four and eight months. Radiation and chemotherapy shrank the aggressive brain tumor, and the family embarked on a series of adventures, including to Disney World, Costa Rica, Jamaica and Ocean City, N.J.Josie also realized a dream when she got to go to Las Vegas and cook with Food Network's Giada De Laurentiis.
"Jo loved to cook, but when we were together we never really cooked anything," recalled Samantha, 6. "We mostly made concoctions."
In May 2015, the family learned that the tumor had returned and spread to Jo's spinal cord. As she became increasingly ill, Josie still delighted in the butterflies and hummingbirds that frequented the gardens outside of her home in Robesonia.
"She and Sam would sit by the window and watch for the hummingbirds," Alissa said. "Jo was like a hummingbird. She was so little and frail, but she was so strong."
The hummingbird became a symbol for the Groves of Josie's strength and grace, and a reminder that, despite great pain, life is still a rich and joyous experience.
"We've seen hummingbirds at the exact times that we needed them to be there," Alissa said. "We feel Jo's presence with us all the time, and the hummingbirds remind us of that presence."
Samantha and Josie's brother, Josh, 4, were busy working on a project involving lollipops for the fundraiser during a recent visit to their home, while their younger brother, Eli, 7 months, watched. How much visitors will pay for a lollipop depends on the color that Sam and Josh painted on the stick. A lollipop with a red stick, for instance, might cost 50 cents or a dollar. Those with green sticks, however, are free.
"Green was Jo's favorite color, so if you get a green one, it's free," Samantha explained.
Despite the chance for free lollipops, Josh had some advice for people who would be attending Thursday's event."Bring money," he said. "It's a fundraiser."Alissa decided to start the Jo's Everglow chapter of The Cure Starts Now in order to honor her daughter and create hope for others who will be exposed to DIPG. Right now there is no cure for DIPG; it is always fatal.
"Basically, when we found out that Jo had DIPG, we were told that there was no hope," Alissa said as she fought back tears. "And, nobody should get the news that there's no hope. That's why we're doing this - we're working to give others hope."
Fitchburg boy knows what it's like to fight cancer. Now he helps others
July 31, 2017
Sentinel and Enterprise
FITCHBURG -- Thiago Molinari finished his last round of treatment a month ago, but the 6-year-old cancer survivor isn't about to forget about the other children he met during his many hospital visits.
"He thinks about the kids in the hospital," Thiago's mother Gabriela Molinari said. "When we leave what happens with the kids?"
Between running in the grass and crawling under tables Saturday, Thiago sold cookies, marshmallows, pretzels and glass after glass of lemonade outside his home on Hancock Street.
His proceeds, $717, isn't going into his own pocket, however.
Instead, it's being donated to Lucy's Love Bus, a Boston nonprofit that offers activities for children with cancer, including the swim class Thiago has attended at the YMCA the last two years.
"They help me," he said.
This is the second year of Thiago's lemonade stand, which drew friends, neighbors, teachers and even the Fire Department, which gave Thiago a ride around the neighborhood.
Debbie Joslyn, Thiago's kindergarten teacher at Johnny Appleseed Elementary School, came out to the lemonade stand with several other people from the school.
"My kids were like, 'we're coming to help Thiago,' " said Joslyn.
Thiago was diagnosed with leukemia when he was 3 years old. June 21 marked his last session of chemotherapy and the family celebrated with a trip to Cape Cod.
Thiago the monkey, a large stuffed ape not much smaller than Thiago the boy, came along too, his mother said.
"We went to a pool at a friend's house and there (the monkey) was. At the pool, floating around," Gabriela Molinari said.
The stuffed animal -- part of Monkey In My Chair, a program for cancer patients -- went to school when Thiago had to miss classes this past year for treatment.
Unlike many at the UMass Memorial Medical Center in Worcester, Thiago never had to spend a holiday at the hospital.
For the children who have, he and his family have run efforts to give other families turkeys on Thanksgiving and candy on Halloween and Easter.
"For Easter he told us what happens with the kids that are staying here?" she said. "How is the Easter bunny going to get to them?"
The family is selling Team Thiago T-shirts, advertised on the Facebook page of the same name, to raise money for this year's Thanksgiving dinner drive.
Though his mother and father, Nestor Molinari, help out in the execution, the fundraising efforts are all Thiago's ideas, Gabriela Molinari said.
"Everything comes from him," she said.
YACHT CLUB HOSTS JBT REGATTA AND AUCTION SATURDAY
July 13, 2017
Laconia Daily Sun
GILFORD — The Winnipesaukee Yacht Club is excited to invite all sailors to the 4th Annual JBT Regatta & Auction. All proceeds will benefit the NH Chapter of The Cure Starts Now Foundation. This is a wonderful charity that Jesse and Alison Thompson, along with their extended family and community at large, have supported whole heartedly. All monies raised will go directly to DIPG research and the ultimate goal of finding a Homerun Cure for Cancer. Explore and learn more at www.thecurestartsnow.org and www.dipg.org.
This year’s event will be held on Saturday, July 15, and will feature a reverse start PHRF sailboat race, followed by a cookout, benefit auction and awards presentation.
If you have a sailboat, you are invited to participate. Even if you’re not normally a racer, this will be a leisurely, reverse start race with lots of great prizes and loads of fun. Festivities will kick off with registration, coffee and muffins at the WYC clubhouse from 8 to 10 a.m., immediately followed by the opening meeting to discuss the course and other details of the race. The first sailboats (based on their individual handicap) will start at 11 a.m.
There is a $40 entry fee for this event. Tax deductible donations to The Cure Starts Now Foundation are encouraged and greatly appreciated.
For more information, contact Jesse Thompson at email@example.com.
TONY STEWART TO DRIVE CURE STARTS NOW CAR AT COUNTY FAIR IN COLUMBUS, IN
July 11, 2017
The Cure Starts Now Foundation is excited to announce that retired NASCAR champion, Tony "Smoke" Stewart, will be driving the Peyton's Angels Indiana Chapter of The Cure Starts Now race car on Tuesday, July 11 at 7:00pm at the Bartholomew County Fair in Columbus, IN.
Peyton’s Angels driver, Jason Setser, graciously offered Stewart the opportunity to use the car at his hometown track in Columbus, IN. Setser has donated his winnings to the Indiana Chapter for DIPG research and has raised over $5,000 in honor of Peyton Whittington.
Peyton’s mother and Indiana Chapter Director, Lynn Whittington says, "I've always been incredibly humbled by how selfless our driver Jason Setser is by donating all of his winnings to The Cure Starts Now. But giving up his seat to Tony Stewart really shows what a great guy Jason is. We are honored to have champion Tony Stewart drive The Cure Starts Now car. It's a pretty fast car and I know he's looking forward to getting out on the track tonight. And an added bonus, he plans to donate back whatever he wins! So go Smoke!”
The Indiana Chapter would like to give special thanks to the Tony Stewart Foundation for sponsoring this race.
About The Cure Starts Now: With 31 chapters worldwide, The Cure Starts Now has quickly gained acclaim as one of the fastest growing cancer research charities and one of the first ones to advocate a homerun strategy for cancer research. Many experts believe that the lessons we learn from fighting pediatric brain cancer may in fact provide us the critical first step in winning the battle against all forms of cancer, both pediatric and adult. Since 2007, The Cure Starts Now, in conjunction with the DIPG Collaborative, has funded over $7.3 million in DIPG/homerun cure cancer research at institutions globally.
To learn more about the Indiana Chapter and how you can get involved, please visit: www.indiana.thecurestartsnow.org
Stewart to race ‘The Cure Starts Now’ car Tuesday at fairgrounds
July 11, 2017
Champion racecar driver Tony Stewart will make his presence known when competing in his hometown Tuesday night in a three-quarter midget car at the Bartholomew County 4-H Fairgrounds.
Stewart will be racing the Peyton’s Angels Indiana Chapter of The Cure Starts Now car, on loan from friend and driver Jason Setser.
Having the three-time NASCAR champion in a car created to promote finding a cure for brain cancer is a huge boost for the chapter and supporters in the medical community trying to find a cure, said Lynn Whittington, founder of the Peyton’s Angels chapter, which sponsors Setser’s car.
She founded the chapter in memory of her son, Peyton Whittington, who died June 4, 2013, at age 5 from a brain cancer called Diffuse Intrinsic Pontine Glioma (DIPG), an inoperable tentacle-like tumor that encased his brain stem. Since then, the chapter has raised millions for research to find a cure, funded through an annual Carnival for the Cure at Ceraland.
The entire Whittington family is planning on being at tonight’s race at the fairgrounds, she said.
While it’s unclear how many logos will adorn Stewart’s car tonight, at least one in particular will be visible to fans, regular driver Setser said.
“I told Tony that ‘The Cure Starts Now’ logo stays on,” Setser said. “That’s why we built the car. We wanted to raise some money, and we wanted to have some fun.”