News About The Cure
The Holguin Agency Announces Regional Charity Initiative to Raise Support to Help Find Cure For Rare Cancer Alongside Team Brock
June 22, 2017
Press Release Rocket
Arlington, TX (PRWEB) June 22, 2017
The Holguin Agency, a Dallas area insurance management and financial planning provider that serves communities across northeastern Texas, is embarking on a charity drive to help raise support for The Cure Starts Now with Team Brock. Brock was diagnosed with a rare cancer, which affecting more and more children. There is no cure, and treatment is expensive.
In May of last year, the Fleming family was informed that Brock had Diffuse Intrinsic Pontine Glioma (DIPG), a rare form of cancer that attacks the brain stem. DIPG is very difficult and expensive to treat due to its close proximity to the brain, and while most children diagnosed with this kind of cancer are only given a year to live.
“Our agency is honored to be part of Team Brock, and our mission during this charity event is to raise awareness of this condition and gather donations that can be used to help find a cure for DIPG,” says Yvette Holguin, owner and executive director of the Holguin Agency.
To galvanize support from families, entrepreneurs, and health care professionals in the Dallas region, Holguin and her team are sharing information about the charity event over email and social media channels. Future efforts to generate publicity and support for the cause will include the publication of a cover article slated for release in a new edition of the Holguin Agency online local interest webzine “Our Hometown”: http://www.holguinagency.com/Our-Hometown-Magazine_39.
As committed members of the “Agents of Change” nationwide charity assistance coalition, Holguin and her team have worked with a number of charities and nonprofit organizations in and around the Dallas region and plan to continue working with many more in the future.
All those who wish to learn more about the Arlington area charity drive to raise support for Team Brock are urged to help further the cause by visiting the following page and taking action: http://www.holguinagency.com/The-Cure-For-DIPG-Starts-Now-With-Team-Brock_27_community_cause. Those who would like to review previous charities championed by the Holguin team can find the firm’s growing list of Community Causes on this page: http://www.holguinagency.com/community-cause?page=1.
About The Holguin Agency
Yvette Holguin and her sister Sonia Holguin Castro have worked with Allstate for over 25 years, combined. During that time they have learned what makes and keeps their customers happy, and established their agency’s focus on providing them with the most courteous and exceptional service possible. It is their priority to function as their trusted advisor, properly covering their assets and offering expert advice regarding their finances, automobile, home, business and anything else that is of value to them. To contact a specialist at The Holguin Agency, call (817) 609-8051.
Northern Kentucky girl chosen as Hyde Park Blast ambassador
June 20, 2017
CINCINNATI — An inspiring little girl fighting cancer in northern Kentucky has been chosen as this year's ambassador for the Hyde Park Blast.
Kambria Koebbe is your normal 8-year-old little girl. She loves swimming, dancing, and Bruno Mars, and she isn't letting cancer slow her down. At times, Kambria feels really sick from treatment, but Tuesday was a good day. This Saturday, will be even better when Kambria helps kick off Hyde Park Blast as the event's ambassador.
"Well, there's going to be bicycle races, and we're going to eat a little bit," Kambria said. "We're going to play."
Kambria has DIP-G, and was recently told cancer was found on her spine.
Her mother, Amberly, said Kambria is ready to take on anything.
"I'm definitely very proud," Amberly Koebbe said. "This is her time to shine. She loves this kind of thing, and being in the spot light. Her dream is to be on TV, and movies one day."
Hyde Park Blast race director, Jeff Branhan, they couldn't have chosen a better ambassador.
"Kambria is just an amazing young lady. What she has been dealing with, and the spirit, and the way that she lives her life, she just absolutely epitomizes what we stand for," Branhan said.
Saturday, June 24, marks the 16th annual Hyde Park Blast. The event kicks off at 7:30 a.m, with a 4-mile run/walk, followed by races, and a block party, benefiting kids fighting cancer.
"If they fight cancer, then they can win the battle," Kambria said.
Proceeds of the event will go to The Cure Starts Now. Visit the organization's website for more information on how to register.
Carnival for a Cure exceeds fundraising goal
June 13, 2017
This year’s Carnival for the Cure exceeded its goal by thousands, raising more than $66,000 to fund research to cure pediatric brain cancer.
The fourth-annual event, which was Saturday at Ceraland Park, is a tribute to the memory of 5-year-old Peyton Whittington, who succumbed to a brain cancer, Diffuse Intrinsic Pontine Glioma. Known as DIPG, Peyton had an inoperable tentacle-like tumor that encased his brain stem. He died on June 4, 2013, in the arms of his mother, Lynn Whittington.
After his death, Whittington created Peyton’s Angels Indiana Chapter of the Cure Starts Now Foundation to raise money for researchers to learn how to fight brain cancers that kill children. Whittington started Carnival for the Cure as a way to raise money for research.
This year’s event attracted about 1,000 people, Whittington said, and was supported by more than 100 volunteers who staffed carnival booths and other attractions.
For more on this story, see Wednesday’s Republic.
Jade's Royal Ball raises more than $70K for rare cancer research
June 12, 2017
COLLEGE STATION, Tex. (KBTX) - In 2016, the Bridier family lost Jade, 4, just a week after she was diagnosed with diffuse intrinsic pontine glioma (DIPG). Now, parents Vicky and Troy are turning their grief into action as they search for a cure for this rare brain cancer that targets children. Because DIPG affects only a small number of families per year, federal funding is limited.
"Ninety-nine percent of funding is parents like us," said Vicky Bridier. "Grieving parents who are searching for a cure."
That's why she organized Jade's Royal Ball, a family-friendly event that invited everyone to be a prince or princess for the event. The event, in its first year, sold out and raised more than $70,000 for research for a cure for DIPG.
Troy Bridier, Jade's father, is a Department of Public Safety trooper. Many of his colleagues attended, in uniform, with their families.
"Brothers," said Troy Bridier. "We're all one big family. They wanted it to be a success."
The 'trooper daddy-daughter dance' even went viral. See the Related Links for the full video. Vicky and Troy Bridier say they're thrilled about the funds raised, but the most special part was feeling Jade in their hearts the whole time.
"Jade was with us," Vicky said. "It was what she wanted."
Watch the complete interview here.
Virginia Golf Tournament Raises $120K for DIPG Research
June 9, 2017
The Cure Starts Now
The results are in for the 8th annual "On Course Fore a Cure" charity golf tournament hosted by The Cure Starts Now Virginia that took place on Thursday, May 18 at Cedar Point Country Club in Suffolk, VA. We are pleased to announce that this year's event raised net proceeds of $120,000! That surpasses last year's total by $10,000 and brings our cumulative total net proceeds to $730,000 since 2010. These funds benefit The Cure Starts Now Foundation and support research to find the cure for pediatric brain cancer.
Event photos are now available to view on Shutterfly. We would like to extend a very special THANK YOU to Tony Alexander and Joe Barnes for donating their fabulous photography services again this year. Click here to view the photos. The Shutterfly site also includes a shared album where anyone can post their own photos from the event. If you took any good ones, please upload them.
Once again, we would like to truly and sincerely thank everyone involved for their generous support of this event including our wonderful sponsors, volunteers, donors and participants. We are incredibly grateful for your contributions! Thank you for helping to make this event another amazing success and a fitting tribute to our sweet Morgan and her courageous battle!
External validation of the diffuse intrinsic pontine glioma survival prediction model: a collaborative report from the International DIPG Registry and the SIOPE DIPG Registry
June 1, 2017
Journal of Neuro-Oncology
The International DIPG Registry's newest publication is now published online in the Journal of Neuro-Oncology.
"This study represents the welcome paradigm shift in DIPG research, in which data are no longer a rate-limiting resource."
Dr. Sophie Veldhuijzen van Zanten from the Netherlands spent a summer with us in Cincinnati in order to complete this project.
'Mommy I want to go home': Last words of four-year-old girl who died five days after being diagnosed with rare inoperable brain tumor
May 30, 2017
The Bridier family only had five days with their four-year-old daughter Jade before she died of a rare brain tumor.
May 18, 2017
The Cure Starts Now
CURE STARTS NOW TO FUND $2 MILLION IN DIPG RESEARCH IN 2017
During Brain Cancer Awareness Month in May, The Cure Starts Now Foundation has announced they will be funding over $2 million in DIPG specific research for 2017. This is in addition to the amount pledged by the DIPG Collaborative and will make the 2017 grant funding cycle one of the largest ever in DIPG research history. In the past 10 years, The Cure Starts Now has been the number one funder of DIPG research and is certain the excitement and information shared at this month’s DIPG Symposium will result in a record number of grants submitted.
Dr. Oren Becher, a grant recipient of The Cure Starts Now, talked about the progress of DIPG research.
“I started working on DIPG in 2007. Back then nobody was studying DIPG, I think I was one of two or three people. Today, I would say there are probably 30 or 40 researchers around the world that are studying DIPG.”
The increased interest in DIPG, as well as the collaborative nature of the researchers and organizations, is paramount to advancing the science and understanding of these tumors. Dr. Michelle Monje of Stanford University, a grant recipient of The Cure Starts Now, is keenly aware of this collaboration.
“We have to work together, this is a small scientific community and whatever resource is available to one researcher should be available to all researchers so we can work together to move forward.”
This $2 million announcement comes in a year that is significant to Brooke Desserich, co-founder of The Cure Starts Now. Ten years ago she never envisioned funding such quality research grants at such a large amount. Yet the DIPG community has certainly responded and thrived in these last 10 years since The Cure Starts Now was started. Brooke Desserich is quick to point out who is to be credited.
“This quick growth is attributed to our 29 dedicated CSN chapter families working together to effectively and efficiently raise the greatest amount of money for DIPG research.”
About The Cure Starts Now: With 29 chapters worldwide, The Cure Starts Now has quickly gained acclaim as one of the fastest growing cancer research charities and one of the first ones to advocate a homerun strategy for cancer research. Since 2007, The Cure Starts Now, in conjunction with the DIPG Collaborative, has funded over $7.3 million in DIPG/homerun cure cancer research at institutions globally.
The Cure Starts Now and DIPG Collaborative grant application deadline is June 1, 2018. To learn more about the grants already funded or to become a part of the large fundraising force behind this $2 million in available funding, please go to www.thecurestartsnow.org, email firstname.lastname@example.org or call 513-772-4888.