NEWS ABOUT THE CURE
Cleaning Essentials for Cancer Patients
March 31, 2020
The fear, the anxiety that surrounds all of America today is what cancer families feel every day. What cold or virus will we bring home from work to our children. With their compromised immune systems, every interaction with strangers is a potential threat to our children’s health and ability to receive the next chemotherapy treatment. We live in constant fear that the sniffle from our co-worker will mean a week in the hospital to our kids’ bodies that are already struggling to fight off the…
A Unified Strategy For DIPG
March 25, 2020
cancertodaymag.org
The following article originally appeared on Cancer Today courtesy of Marci A. Landsmann A couple who lost their daughter to brain cancer builds a charity that connects parents, hospitals and researchers with data. ENTREPRENEURS KEITH AND BROOKE DESSERICH were used to doing SWOT analyses—an acronym for strengths, weaknesses, opportunities and threats—as a step in setting a business plan in motion. These tactics, along with a high tolerance for risk, are how the husband-and-wife team…
Exciting New Tool Helps DIPG Families Find Trials Easier
March 25, 2020
This week, The Cure Starts Now rolled out a new tool in their ever expanding arsenal for families fighting Diffuse Intrinsic Pontine Glioma (DIPG). Building on the extensive repository of research and information at DIPG.org, families can now signup for daily or weekly updates for DIPG specific research to be delivered to their email inbox. The new tool expands on their already popular research search page at DIPG.org by giving them instant notifications when trials become open or available.…
Characteristics of Long-Term Survivors of DIPG
March 11, 2020
Journal of Clinical Oncology
The following paper was originally published in Journal of Clinical Oncology in 2018. Researchers compare clinical, radiologic, and histomolecular characteristics between short-term survivors and long-term survivors of DIPG using data compiled from the International DIPG /DMG Registry and their 1,100+ patient records collected. The DIPG/DMG Registry is fully funded by the DIPG Collaborative and The Cure Starts Now. A 5 country alliance of over 100 hospitals and over 1,100 DIPG/DMG patients, it…
Dr. Adam Green provides an update on his DIPG research for The Cure Starts Now
February 28, 2020
Toward a Multimodality Cure for DIPG: Investigation of Intratumoral Drug Penetration and Craniospinal Irradiation “We work on a lot of different projects in DIPG, but with our recent Cure Starts Now grants, we wanted to look at some really fundamental questions about how DIPG is treated currently and how we can improve that going forward. So, the current standard of care treatment for DIPG is focal radiation just to the pons and we know that it's transiently effective, but that the tumor always…
Are There Any Survivors of DIPG?
February 6, 2020
The diagnosis of diffuse intrinsic pontine glioma ( DIPG ) or diffuse midline glioma (DMG) is often casually regarded as a terminal cancer, but what are the true statistics regarding survival? For the first time since the classification of DIPG and DMG we now have these numbers due to the selfless participation of over 1,400 patients in the International DIPG/DMG Registry and the SIOPe (European) DIPG Registry. The largest linked database of DIPG and DMG data comprising the cooperative efforts…
Florida DIPG Family Selected as the Newest Chapter of The Cure Starts Now
January 23, 2020
Anthony Franzini's family uses the grief of losing their son to create a legacy of cancer research for other kids like him. Cincinnati, OH | January 23, 2020 — The Cure Starts Now Foundation has selected its 41st chapter in Port Orange, Florida in honor of Anthony Franzini who was diagnosed with DIPG in June of 2017. Anthony went through 6 weeks of radiation and chemo treatments, however that didn’t buy him much time. He earned his angel wings four short months after being diagnosed shortly…
Creating Good Cancer Research
January 20, 2020
In previous articles we’ve discussed key fundamentals of The Cure Starts Now grant funding process. And while this helps to perfect what we fund, how exactly does the Medical Advisory Council of The Cure Starts Now keep creating and finding good projects? The first thing to understand is that The Cure Starts Now is the “un-charity”. Rather than to simply assume the mistakes of the past, we believe the model of cancer research must be revolutionized. We just can fund the same projects others…
How The Cure Starts Now Funds Better Research
January 13, 2020
In just 12 short years, The Cure Starts Now has already been at the forefront of many of the world's most innovative cancer fighting strategies. Why? How does a small charity with a limited focus match the impact of some of the world’s largest charities? The answer is strategy. Funding cancer research is just about how you fund as much as what you fund. And when you have limited funds, the last thing you want is to waste critical dollars. That's why every dollar spent by The Cure Starts Now…
The Cure Starts Now and Partners Renew Oncoceutics Expanded Access of ONC201
January 6, 2020
In partnership with xCures, Cancer Commons and the Musella Foundation, The Cure Starts Now is pleased to announce a renewal of $100,000 for the Oncoceutics Expanded access of ONC201, bringing the total contribution by The Cure Starts Now to over $267,000. Part of this program is an intermediate size Expanded access protocol for ONC201 in patients with H3 K27M-mutant glioma entitled “ONC018: Expanded access to ONC201 for Patients with H3 K27M-mutant and/or Midline High Grade Gliomas” that was…
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