Our History

Our History

Elena's Heart Painting


The words “the cure starts now” appear at the end of a blog titled “Notes Left Behind:  135 Days with Elena” written by her parents, about Elena’s journey, for her younger sister

Supporters around the nation write in support of Elena and unofficially use The Cure Starts Now as the name of their efforts.

The Cure Starts Now Foundation officially starts, founded by the Desserichs

Notes Left Behind


The Cure Starts Now is featured on Good Morning America when “Notes Left Behind” becomes a book.  It is later picked up by Harper Collins Publishers to benefit the charity.

The first “Caps for the Cure” starts in honor of Elena Desserich

Ren Pedersen, Director of The Cure Starts Now: Australia


Australia becomes The Cure Starts Now’s first international chapter

Alabama is recognized as The Cure Starts Now’s first chapter

“Notes Left Behind” is reprinted worldwide and becomes a New York Times Bestseller.  By 2012 it has been reprinted in 20 different languages.

The first “Race Against the Odds” is started in Washington, DC in honor of Alexis Agin

Make a Stand lemonade stand


The first “Make a Stand” is started.  Kids around the US supported other kids who battled cancer.

The Cure Starts Now creates the “DIPG Collaborative” to unify other cancer charities in pursuit of revolutionary research for DIPG

The Cure Starts Now funds their first international grant in Australia

The Cure Starts Now reaches 12 chapters worldwide.

Monkey In My Chair


The Cure Starts Now joins with the “Monkey in My Chair Program”, offering support to families in the fight.

The very first “DIPG Symposium” is hosted by The Cure Starts Now in Cincinnati

Seminar at the DIPG Symposium


The Cure Starts Now and the DIPG Collaborative establish and fund The International DIPG Registry with Cincinnati Children’s Hospital.  The SIOPe Registry in Europe soon follows.

The Cure Starts Now achieves over $1 million in research funding

Check presentation to Baylor College or Medicine


The Cure Starts Now achieves over $2 million in research funding

Monkey in My Chair goes international with growth in Canada and Australia

Lauren Hill


Lauren Hill reaches the international stage as an ambassador to The Cure Starts Now and raises over $1 million

Check presentations for research funded by The Cure Starts Now and the DIPG Collaborative


The Cure Starts Now and its DIPG Collaborative partners reach $6.8 million in research funded

“Layup4Lauren” takes off as a viral fundraiser for research

Founders Brooke and Keith Desserich are awarded the prestigious Jacqueline Kennedy Onassis Service Award in Washington, DC for their efforts with The Cure Starts Now.

Over $2.2 million is raised in honor of Lauren Hill


The Cure Starts Now reaches 30 chapters internationally and opens a chapter in Calcutta, India.

The Cure Starts Now sponsors the DIPG session at the international ISPNO meeting and challenges researchers with the creation of a “Snap Grant”.